The USEB would like to know if any SLAS members could conduct a star party Thursday night August 5th at the National Ability Center in Park City. About 25 people with EB ( youth to adults) and some of their helpers, about 40 in all, are attending a week long summer camp. Because of the nature of EB many of these people do not get a chance to leave home very often. To see more about EB click here http://ebsurvivors.org For those who would like to volunteer please contact Jamie Hartley at jamiediane@gmail.com Thank for your consideration Jamie Hartley